Useful links

You may find the charities listed below useful. The Raphael Hospital is not responsible for the content of external internet sites.

 

United Kingdom Acquired Brain Injury Forum
UKABIF is a membership organisation and promotes understanding of all aspects of brain injury through education, information and networking.

 

 

The Epilepsy Society
The Epilepsy Society provides resources, support, research, therapies and activities as well as diagnosis and treatment for those suffering with epilepsy.

 

 

Brain & Spine Foundation 

The Brain and Spine Foundation aims to improve the quality of life for people with neurological disorders and to reduce neurological disability through research, education, and patient and carer support and information programmes.

 

 

Brain Tumour Charity 
Brain Tumour Charity is the leading, caring charity committed to fighting brain tumours. Their personalised support is available online, on the telephone, by email and through support groups. Their scientific research improves the quality of life for brain tumour patients and identifies better treatments. They raise awareness to change things for the better, for everyone affected by a brain tumour.

 

 

Encephalitis Society 
The Encephalitis Society supports adults and children affected by encephalitis, their families and carers by providing advice and information and working at national level to improve services.

 

 

Guillain-Barré and Associated Inflammatory Neuropathies 
GAIN offers support and information to those affected by Guillain-Barré syndrome, CIDP and other dysimmune neuropathies throughout Britain and Ireland.

 

 

Headway – The Brain Injury Association 
Headway supports people with brain injury, their families and carers and concerned professionals. It has groups throughout the UK, many of which run activity/rehabilitation centres called Headway Houses. It campaigns for improved statutory services for people with brain injury.

 

 

Huntington’s Disease Association 
The Huntington’s Disease Association exists to support families affected by Huntington’s disease. It is a patient organisation and the main thrust of its work is to provide care, advice, support and education to families and professionals caring for someone with the illness, the individual themselves, and those at risk of developing it.

 

 

Independent Neurorehabilitation Providers Alliance 
The Independent Neurorehabilitation Providers Alliance (INPA) is an alliance of providers that decided to group together to form a strong voice in the sector, ensuring that neurorehabilitation is delivered in quality environments, by trained and experienced staff in a caring way to assist the rehabilitation process.

 

 

Motor Neurone Disease Association 
The Motor Neurone Disease Association works to ensure that people affected by motor neurone disease secure the highest standards of care in order to achieve quality of life. It stimulates and funds research into the causes of motor neurone disease. It provides a helpline, information, equipment loan, financial support, a network of regional care advisers, local branches and volunteer visitors.

 

 

Multiple Sclerosis Society 
The Multiple Sclerosis Society provides support and information for people affected by multiple sclerosis through a network of branches and through helpline and publications. It carries out research into multiple sclerosis and policy work and campaigns on multiple sclerosis issues. It also provides respite and holiday homes.

 

 

Parkinson’s UK 
Parkinson’s UK provides practical support, information and advice to people with Parkinson’s and their carers. They fund research to investigate the causes of Parkinson’s, to improve the treatments available and to develop new treatment techniques.

 

 

The Neurological Alliance 
The Neurological Alliance promotes the understanding of all aspects of brain injury and provides information, support and services to people with a brain injury.

 

 

The Stroke Association 
The Stroke Association aims to help all in England and Wales affected by stroke. They develop and provide services, support research, disseminate knowledge, provide training and education to improve standards of care.